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Hemophilia in Kenya...What's New? |
This year Annual Gala
Dinner will be held at Safari Park Hotel on the 16th September 2011.
The Event Starts at 7 pm at the Nyama Choma Ranch....
Entry
Kshs. 5,000/-
per
person
and
Kshs. 7,000/-
per person for VIP ticket
Including a welcome drink and biting, full gala dinner and wine and
amazing entertainment by the most unusual Kenyan artists........more
Hemophilia is a rare blood clotting disorder, occurring in one in
10,000 male births. It affects people regardless of ethnicity, race
or religion.
.................. Learn more a....More
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Jose
Memorial Hemophilia Society-Kenya
has been formed as a
non-profit Organization dedicated
to helping those who suffer from hemophilia.
The
Society is founded in memory of Joseph Nyang’wara,
who had hemophilia and passed away on April 25th 2007 at the age of 6 years.
It is based on the experiences of his mother and other patients and
their parents/carers which include:
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That there is not sufficient factor, FFP or cryo-precipitate for
patients most of the time,
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Most parents cannot afford factor as its very expensive,
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There is lack of comprehensive care for patients (a
misconception that hemophilia is all about factor)’
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There
is such a dearth of information for patients and their
caregivers on how to manage hemophilia.
This
society therefore aims to obtain better medical care through
securing blood clotting medicine, training, and teaching patients
how to care for themselves.
Vision
Healthy, active and empowered citizens living with
Hemophilia
Mission
To
provide comprehensive care, medical support and service to people
with Hemophilia through registration, provision of treatment,
education and training.
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